|
|
Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
|
Ailsa - oops yes I will before you
Dorothy - you will be leading our 'successes' then
Rose x
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 9/21/2010 Posts: 32 Location: west midlands
|
Hello all, I really hope all your appointments go well, fingers crossed for best results for each of you  Good luck x
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
|
will post when i get back from all my excitment on monday,cheers
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
|
Dear All, It looks as if we are all having an exciting few weeks ahead. My appointment is on Tuesday 5th. I cannot wait, for one reason the medication is definitely not working and I need to see where I move to after two failed anti-tnfs. The second reason is that we have just had a new Rheumatology unit in Telford. It was previously based in the hospital but now has its own centre and when I get there on Tuesday there should be staff from every area in attendance from Consultants, to rheumy nurses, to occupational health, to physiotherapy etc and I can see whoever I need to see all in one appointment. Apparantly our Primary Care Trust have taken over the running of the Rheumatology service and pumped some money into giving us a far better service. Take care all of you and hope your appointments go well. Jackie xx
|
|
|
Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
|
Whow Jackie, great dept of Rheum it sounds brill. Good luck.I have also had 3 DMARDS fail so
similar as you. Let us know how you get on
Rose x
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/16/2009 Posts: 156
|
Hi
sorry not been on for a while been in one of those fed up moods and not sure what to do with ones self but getting out of it a bit now.
glad you all got your appoinments and do let us know how you go ......I had mine last week been on Anti TNF for 3 mths now and this was the first check up since i started it, i was a bit nervous when i was going but soon got over that, the rummy nurse was happy with the results she said my RA factor in my blood had come down about 40 pionts and my das score was 6.88 so she was happy with this. I said to her if it is going well why do i feel so bad she said a lot of this was down to my fybromyalger (sorry not sure that is spelt correct) and she said at this point there is not a lot we can do for that, so that is how i left the hospital last week, and with an appointment for3mths time.
but never mine i have you guys to talk to when i feel low hope this rain is not making any of you suffer more, will have to go now need some food.
take care
love
Audrey x
|
|
|
|
Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
|
Hi Audrey
Good to hear from you but sorry you are feeling a bit low ... the weather certainly isn't inspiring!
Pleased to hear the biologics are working for you. Still early days, but the signs of improvement look promising. Perhaps once the RA is better controlled you may get some respite from the fibromyalgia, fingers crossed for you :)
Do keep posting Audrey, look forward to chatting with you soon,
Lyn x
Hi Jackie
Wow, what a fab set up! I can see why you are so excited Wouldn't it be great if we all had access to such wonderful services ... I struggle to even get a depo jab!!
Do hope they are able to come up with an alternative drug for you; it's worrying isn't it (well it will worry me!) to have failed two anti-tnfs? But there are new meds being made available all the time, some of which work in a different way, so there's every chance they will have something for you. Rituximab is often the next one along the line, it works on the B Cells rather than the T Cells. Let us know how you go on,
Lyn x
|
|
|
Rank: Advanced Member Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
|
hello to all,hope weekend was good, as i thought my r/nurse didnt appear but my lovely o/t was there as per so now im sorted i think  ,dont have to get bloods book filled in as on comp/file ,have to keep going with the hydroxy, now back on 2 x day,if get headaches take co-codomol, yet again go to gp,one thing i have to look forward to is "relaxation" appt to help me sleep, so hope everyone gets good news when they get to appts, at least im getting some answers now.thank you all for the advice and queries really has helped me, 
|
|
|
|
Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
|
How did you get on Rose? Been thinking of you today and hoping it went well. Have a good weekend XX Ailsa
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
|
Hi Rose
Have been thinking of you too, hope all went well at the hospital yesterday. Look forward to hearing how you got on.
Julia x
|
|
|
|
Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
|
Hi Rose - hope you are ok? Been thinking of you and wondering how you got on on Friday? XX Ailsa
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 1/29/2010 Posts: 264
|
Hi Rose, is anything wrong? wondered how you are and how the appointment went?
Thinking of you
Sheila
|
|
|
Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
|
Sorry Folks - I just got my laptop back after 11 days without one - dreadful
so sorry to have missed every one and also wondering how everyone got on. Awful not
having a laptop I feel soo out of touch.
I am tired now but will log on tomorrow and fill everyone in, and I promise to try and
catch up on all posts.
Night all.
Rose x
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
|
hi Rose,
good to herar from you was wondering how you are,
hope to hear from you today x
|
|
|
Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
|
Hello All
I have my laptop back - although it still doesn't appear to be logging on - fingers crossed.
Well missed everyone and will read up posts later today to catch up on everyone.
Well last Monday (9 days ago) i woke up at 5.30 and couldn't get my head of the pillow.
I had vertigo . Have had that before and so knew what it was. It is a horrid thing room
spinning and being sick. Doc got tablets to me so only sick the 1 day but now even 9 days
later I have to watch myself as if I move too quickly I start spinning. He has given me
more tablets so hope will go away. Next Thursday off to Girona for 3 nights.
Well saw Specialist who very nice , but was running over an hour late. Good examination
and gave me a depo. She is referrring me to Rhummy Nurse for councelling for anti TNF's.
and said I would hear shortly. Well you won't believe this but had a letter to see Nurse and it
is 15.14.2011 yes 2011. . . has to be wrong. Tried ringing and no one includ secretary
not in office today. grr.
My Doct signed me off till 1st November when then I hope to start back part time at work.
I am off now to see my Boss to see if we can iron out details. I am waiting for 'access to
work' to ring me back as need work based assessment.
I have to go now. Will log on later though. Hope everyone is well.
Rose x
|
|
|
Rank: Advanced Member Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
|
Hi Rose
Good to hear from you today and hopefully you don t lose your laptop again.
Really sorry to hear that you have vertigo and hope it goes very quickly, a friend has had it and know it is not very nice at all. Well I do struggle to believe the date of the appt. something wrong somewhere I m sure when you eventually get through all will be revealed and mistake rectified !!
Await your update on all this, hope you re feeling bit better now.
Julia x
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
|
Hi Rose,
Nice to see you back but sorry about the vertigo, I hope it goes away soon.
surely that date must be wrong, they can't make you wait so long without any meds, I hope you can get it changed to a much earlier date.
Love, Doreen xx
|
|
|
Rank: Advanced Member Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
|
hi Rose,
so sorry to hear how ill you've been and hope things improve soon.
i really hope the date is a misprint for the appointment !!
come back and let us know and hope the laptop behaves itself as well.
thinking of you going through this stressful time.
Suzanne x
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 9/5/2010 Posts: 364 Location: mid glamorgan
|
Hi Rose
Sorry that youve had vertigo! I had it once had to crawl around the house nightmare! Anyway hope its settled down now.. Cant believe that appt date it must be wrong. Hope things with work go well and depo injection does its job! Take care luv Ceri xx
|
|
|
|
Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
|
Hi Rose - good to hear from you but sorry to hear you have vertigo. It sounds horrible. Hope you are fully better very soon. Did you manage to sort out your appointment ime? It's ridiculous to have to wait till next year to begin the process. Hope your depo is giving some relief and that the Access to Work people can give some real help. Good Luck XX Ailsa
|
|
|
|
|
|
|
